Diary of a Mother on the Edge

The film follows Henrietta Spink, whose sons Henry and Freddie, both suffer with a genetic illness and need constant care. Henrietta faced losing her home when she went to court to extend just 30 hours of help.

When Henry was born, he passed medical checks but fell asleep for 3 years. He is completely helpless. Freddie is slightly less dependant, but erratic in his behaviour.

This is their story.